T1D Misdiagnosis

Understanding common queries and exclusive information about diabetes of any type.

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Lua’s Diabetes Misdiagnosis: 7 Years of Frustration & Severe Symptoms

Ginger Vieira

February 22, 2025

Ginger Vieira

March 21, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Broadway Actor Kyle Banks & His Diabetes Misdiagnosis

Tara Mayo

February 17, 2025

Tara Mayo

March 21, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Misdiagnosed with Type 2 Diabetes: A Journey to Understanding Type 1

Tara Mayo

February 16, 2025

Tara Mayo

March 25, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Misdiagnosed with Type 2 Diabetes: Megan's Journey to a Type 1 Diagnosis

Tara Mayo

February 1, 2025

Tara Mayo

March 25, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Misdiagnosed with Gestational Diabetes & Type 2 Diabetes

Ginger Vieira

January 26, 2025

Ginger Vieira

March 25, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Nearly Fatal Misdiagnosis with Type 2 Diabetes

Ginger Vieira

January 20, 2025

Ginger Vieira

March 25, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Surviving a Type 2 Diabetes Misdiagnosis & Denial: Rebecca’s Story

Ginger Vieira

December 30, 2024

Ginger Vieira

March 25, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Actor, Author and Advocate Reneé Rayles

Erin Poche

December 23, 2024

Erin Poche

March 25, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Lydie’s Type 2 Misdiagnosis Story

Ginger Vieira

December 22, 2024

Ginger Vieira

March 25, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

‍Misdiagnosed With T2D: Trapper’s Story of Persistence

Ginger Vieira

December 16, 2024

Ginger Vieira

March 25, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Trying to “Reverse” Type 2 Diabetes with Extreme Diet & Exercise When You Actually Have Type 1

Ginger Vieira

October 26, 2024

Ginger Vieira

March 25, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Misdiagnosed with T2D for 10 Years: Did Doctors Cause Her Retinopathy?

Ginger Vieira

October 19, 2024

Ginger Vieira

March 25, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

‍Trying to “Reverse” Type 2 Diabetes When You Actually Have Type 1

Ginger Vieira

October 14, 2024

Ginger Vieira

March 25, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

DiabeticU: An All-in-One Diabetes Health Platform

Erin Poche

October 13, 2024

Erin Poche

March 25, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

A Diabetes Educator Fights for a Patient’s Correct Diagnosis

Ginger Vieira

September 23, 2024

Ginger Vieira

March 26, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Misdiagnosed with Type 2 Diabetes and Epilepsy: A Cautionary Tale for Primary Doctors

Ginger Vieira

September 9, 2024

Ginger Vieira

March 26, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

T’ara’s T2D Misdiagnosis Story

Ginger Vieira

August 26, 2024

Ginger Vieira

March 26, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Lance Bass Misdiagnosed with Type 2 Diabetes - He really has Type 1.5

Ginger Vieira

August 5, 2024

Ginger Vieira

March 26, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Misdiagnosed with Prediabetes & Type 2 Diabetes at 24 Years Old

Ginger Vieira

August 3, 2024

Ginger Vieira

March 26, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Type 1 Diabetes Testing

Erin Poche

May 3, 2024

Erin Poche

March 27, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Misdiagnosis of Type 1 and Type 2 Diabetes

Laura Rogers

April 17, 2024

Laura Rogers

March 1, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Adult Onset Type 1 Diabetes: What You Need to Know

Erin Poche

April 7, 2024

Erin Poche

March 1, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Why is Type 1 Diabetes Not Being Diagnosed?

Laura Rogers

March 27, 2024

Laura Rogers

March 1, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

DiabetesSangha’s Peter Friedfeld on his Misdiagnosis and Managing the Ups and Downs of T1D

Erin Poche

January 30, 2024

Erin Poche

March 27, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Trevor Williams – DiabetesMine Patients Voice Scholarship Winner and T1D Advocate

Erin Poche

December 14, 2023

Erin Poche

March 27, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Amy Tenderich –T1D Visionary and Founder of DiabetesMine Innovation Days

Erin Poche

December 8, 2023

Erin Poche

March 27, 2025

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T1D Misdiagnosis

Understanding common queries and exclusive information about diabetes of any type.

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Two Sisters with T1D: Still One Misdiagnosed

‍For three years, Justine lived with the wrong diagnosis. Despite having textbook symptoms of type 1 diabetes and a sister with T1D, she was told it was type 2, handed a prescription, and sent on her way. It took years of relentless advocacy, a sister’s support, and a nonprofit stepping in to finally get the right answers. But why did it take so long?

Tara Mayo

March 22, 2025

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Fighting for the Right Diagnosis: How One Woman Discovered Her Type 1 Diabetes

For years, Zorya did everything in her power to manage what doctors told her was type 2 diabetes — only to discover it wasn’t type 2 at all. It was type 1. This is her story of frustration, self-advocacy, and ultimately, finding the right diagnosis.

Tara Mayo

March 16, 2025

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Misdiagnosed with Type 2 Diabetes for Five Years: Nazak's Story

In the summer of 2014, Nazak Malekan, a data analyst and translator from Montreal, received news that would change her life. At 42 years old, she was diagnosed with type 2 diabetes. Unfortunately, it would take five years of advocating for herself to get the correct diagnosis: type 1 diabetes (T1D).

Ginger Vieira

March 1, 2025

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Lua’s Diabetes Misdiagnosis: 7 Years of Frustration & Severe Symptoms

At 42 years old, Lua has spent nearly half her life navigating the challenges of diabetes. But for seven long years, she was misdiagnosed with type 2 diabetes. The journey to the correct diagnosis was filled with medical confusion, frustration, struggle, and unwavering determination.

Ginger Vieira

February 22, 2025

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Broadway Actor Kyle Banks & His Diabetes Misdiagnosis

Performing on a Broadway stage is no small feat, requiring a blend of stamina, precision, and passion. For Kyle Banks, the founder of KylerCares, managing type 1 diabetes compounded the challenge—a condition that has become part of his story both on and off the stage.

Tara Mayo

February 17, 2025

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Misdiagnosed with Type 2 Diabetes: A Journey to Understanding Type 1

Kerry was misdiagnosed with type 2 diabetes at 31 years old. Her story is one of perseverance, resilience, and determination to bring joy back into her life—even in the face of a chronic illness.

Tara Mayo

February 16, 2025

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Misdiagnosed with Type 2 Diabetes: Megan's Journey to a Type 1 Diagnosis

Megan's journey with diabetes began during her first pregnancy at 18 years old. What started as a standard glucose tolerance test quickly became a life-changing (and frustrating) experience.

Tara Mayo

February 1, 2025

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Misdiagnosed with Gestational Diabetes & Type 2 Diabetes

Anna Nicolaou was misdiagnosed with gestational diabetes at 27 years old during her first pregnancy. She was misdiagnosed at age 30 during her second pregnancy and misdiagnosed again at 33 years old during her third pregnancy.

Ginger Vieira

January 26, 2025

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Nearly Fatal Misdiagnosis with Type 2 Diabetes

Steven Thompson’s A1c was 15 percent when he was misdiagnosed at 26 years old in 1991.This means his blood sugar levels were over 400 mg/dL every day.

Ginger Vieira

January 20, 2025

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Surviving a Type 2 Diabetes Misdiagnosis & Denial: Rebecca’s Story

Rebecca Dugas was misdiagnosed with type 2 diabetes in her mid-30s. Since then, she’s been through a lot—ER visits, side effects of type 2 drugs, and the consequences of diabetes denial.

Ginger Vieira

December 30, 2024

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Actor, Author and Advocate Reneé Rayles

Reneé Rayles, a leader in the T1D community, created the popular platform “Hey Type 1 Diabetes” to empower and support T1D individuals. Here, she shares her passion for diabetes education and transparency, her misdiagnosis with T2D, and her advocacy efforts to make insulin affordable for all.

Erin Poche

December 23, 2024

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Lydie’s Type 2 Misdiagnosis Story

In 2023, Lydie Pincemin was misdiagnosed with type 2 diabetes at 45 years old. Recent studies suggest that up to 40% of adults over 30 with type 1 diabetes are initially misdiagnosed as type 2 cases. Understanding that a T1D diagnosis can occur at any age is vital to receiving life-saving treatment.

Ginger Vieira

December 22, 2024

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‍Misdiagnosed With T2D: Trapper’s Story of Persistence

Trapper Haskins, musician, author and woodworker, was misdiagnosed with type 2 diabetes at 36 years old in 2013. He endured seven years of frustration with extreme exercise and severely restrictive diets trying to reverse type 2 diabetes (T2D) before he received an accurate diagnosis.

Ginger Vieira

December 16, 2024

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Trying to “Reverse” Type 2 Diabetes with Extreme Diet & Exercise When You Actually Have Type 1

At 43 years old, Ana Alvarez Pagola was misdiagnosed with type 2 diabetes while living in Argentina. Now, nearly 20 years later, Ana still remembers the year of confusion quite clearly.

Ginger Vieira

October 26, 2024

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Misdiagnosed with T2D for 10 Years: Did Doctors Cause Her Retinopathy?

In 2009, Mona Verma was misdiagnosed with type 2 diabetes at 36 years old in Toronto, Canada. By the time she was diagnosed correctly with type 1 diabetes in 2020 during the COVID-19 pandemic, she had endured a decade of very high blood sugar levels.‍

Ginger Vieira

October 19, 2024

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‍Trying to “Reverse” Type 2 Diabetes When You Actually Have Type 1

Griet De Schaepmeester was misdiagnosed with type 2 diabetes at 45 years old in 2024 — and this misdiagnosis wreaked havoc on her entire life for months. ‍

Ginger Vieira

October 14, 2024

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DiabeticU: An All-in-One Diabetes Health Platform

When Matthew Tremellen was diagnosed with type 2 diabetes at 47, he struggled to find essential resources to improve his condition. After failing to uncover an all-encompassing tool that assists with meal planning, exercise, carb counting, and inspiring tips, he decided to build his own—DiabeticU.

Erin Poche

October 13, 2024

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A Diabetes Educator Fights for a Patient’s Correct Diagnosis

Stepping around a doctor isn’t an easy decision for a nurse practitioner or diabetes educator. A nurse isn’t supposed to question a doctor’s diagnosis. Fortunately for a young man in Illinois, a diabetes educator found the courage and strategy to work around a stubborn doctor’s misdiagnosis.

Ginger Vieira

September 23, 2024

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Misdiagnosed with Type 2 Diabetes and Epilepsy: A Cautionary Tale for Primary Doctors

Robert Coombs was 27 years old when he was misdiagnosed with type 2 diabetes in 2007. Unfortunately, this diagnosis led directly to the misdiagnosis of a second condition. Both misdiagnoses are largely the result of new and experienced doctors making assumptions in the face of undiagnosed medical conditions.‍

Ginger Vieira

September 9, 2024

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T’ara’s T2D Misdiagnosis Story

At 25 years old, T’ara Smith was misdiagnosed with type 2 diabetes. She had an A1c of 15% and felt increasingly lousy for months before she went to her primary care doctor.

Ginger Vieira

August 26, 2024

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Lance Bass Misdiagnosed with Type 2 Diabetes - He really has Type 1.5

Even the rich and famous can be misdiagnosed with type 2 diabetes when they actually have type 1! Lance Bass — the 90s boyband pop star from N’Sync — recently shared that he’s been diagnosed with type 1 diabetes at 45 years old. A few years ago, though, he was diagnosed with type 2 diabetes after a bout with COVID-19.

Ginger Vieira

August 5, 2024

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Misdiagnosed with Prediabetes & Type 2 Diabetes at 24 Years Old

Emily Trantum was misdiagnosed twice. When Emily’s doctor first diagnosed her with prediabetes in 2011, she wasn’t exactly surprised. Several of her older family members had type 2 diabetes, including a grandparent, aunt, and uncle on her mother’s side. But the confusing part was this: Emily was only 24 years old. ‍

Ginger Vieira

August 3, 2024

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Type 1 Diabetes Testing

Diabetes mellitus—a chronic disease that occurs when the body can’t produce enough insulin to support the cells for energy—has many associated types and tests. With more than 133 million Americans living with diabetes and more cases escalating every day, it’s essential to differentiate between the various forms, assessments, and treatment plans for each.

Erin Poche

May 3, 2024

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Misdiagnosis of Type 1 and Type 2 Diabetes

Just as some children with type 1 diabetes are incorrectly assessed with the flu or some other viral infection, recent studies indicated that up to 40% of adults with type 1 diabetes are misdiagnosed with type 2 diabetes. These dangerous miscalculations and insufficient testing may lead to hospitalization with severe diabetic ketoacidosis, diabetic coma and even death.

Laura Rogers

April 17, 2024

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Adult Onset Type 1 Diabetes: What You Need to Know

There is a growing prevalence of adult onset T1D diabetes cases worldwide. As the autoimmune disorder (diabetes type 1) was often found in children and young adolescents, misdiagnosis of type 2 diabetes is often common in adults.

Erin Poche

April 7, 2024

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Why is Type 1 Diabetes Not Being Diagnosed?

Contrary to popular belief, type 1 diabetes does not happen exclusively during childhood. In fact, almost 50% of type 1 diabetes diagnosis arises in adulthood. Data from the UK Biobank shows that more than 40% of type 1 diabetes occurs after age 30 and that many patients are often initially diagnosed with type 2 diabetes.

Laura Rogers

March 27, 2024

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DiabetesSangha’s Peter Friedfeld on his Misdiagnosis and Managing the Ups and Downs of T1D

After a type 2 diabetes (T2D) misdiagnosis at age 55, Peter Friedfeld underwent two years of mismanagement and hardship until he finally received the correct diagnosis as a type 1 adult. The Lancet reports that up to 40% of adults might be misdiagnosed with type 2.

Erin Poche

January 30, 2024

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Trevor Williams – DiabetesMine Patients Voice Scholarship Winner and T1D Advocate

Battling the misperceptions of type 1 diabetes is another challenge T1Ds encounter. People of all ages, races, sizes, ethnicities, and lifestyles can have type 1 diabetes. Most importantly, the lack of awareness in emergency rooms around the country has led to dangerous misdiagnoses among T1Ds.

Erin Poche

December 14, 2023

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Amy Tenderich –T1D Visionary and Founder of DiabetesMine Innovation Days

The world needs trailblazers. Risk takers who see a problem and find a solution. Their vision takes existing ideas to new levels and empowers others to follow. The diabetes community is fortunate to have Amy Tenderich, DiabetesMine founder, who has used her experience to educate, open doors and elevate a needed change in diabetes healthcare and technology.

Erin Poche

December 8, 2023

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T1D Misdiagnosis

Latest News

Two Sisters with T1D: Still One Misdiagnosed

Fighting for the Right Diagnosis: How One Woman Discovered Her Type 1 Diabetes

Misdiagnosed with Type 2 Diabetes for Five Years: Nazak's Story

Lua’s Diabetes Misdiagnosis: 7 Years of Frustration & Severe Symptoms

Broadway Actor Kyle Banks & His Diabetes Misdiagnosis

Misdiagnosed with Type 2 Diabetes: A Journey to Understanding Type 1

Misdiagnosed with Type 2 Diabetes: Megan's Journey to a Type 1 Diagnosis

Misdiagnosed with Gestational Diabetes & Type 2 Diabetes

Nearly Fatal Misdiagnosis with Type 2 Diabetes

Surviving a Type 2 Diabetes Misdiagnosis & Denial: Rebecca’s Story

Actor, Author and Advocate Reneé Rayles

Lydie’s Type 2 Misdiagnosis Story

‍Misdiagnosed With T2D: Trapper’s Story of Persistence

Trying to “Reverse” Type 2 Diabetes with Extreme Diet & Exercise When You Actually Have Type 1

Misdiagnosed with T2D for 10 Years: Did Doctors Cause Her Retinopathy?

‍Trying to “Reverse” Type 2 Diabetes When You Actually Have Type 1

DiabeticU: An All-in-One Diabetes Health Platform

A Diabetes Educator Fights for a Patient’s Correct Diagnosis

Misdiagnosed with Type 2 Diabetes and Epilepsy: A Cautionary Tale for Primary Doctors

T’ara’s T2D Misdiagnosis Story

Lance Bass Misdiagnosed with Type 2 Diabetes - He really has Type 1.5

Misdiagnosed with Prediabetes & Type 2 Diabetes at 24 Years Old

Type 1 Diabetes Testing

Misdiagnosis of Type 1 and Type 2 Diabetes

Adult Onset Type 1 Diabetes: What You Need to Know

Why is Type 1 Diabetes Not Being Diagnosed?

DiabetesSangha’s Peter Friedfeld on his Misdiagnosis and Managing the Ups and Downs of T1D

Trevor Williams – DiabetesMine Patients Voice Scholarship Winner and T1D Advocate

Amy Tenderich –T1D Visionary and Founder of DiabetesMine Innovation Days

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